Google
Trusted Resources: News & Events
Latest announcements and gatherings
COVID-19 Resources for Non-Profit Leaders and the Community | National Organization for Rare Disorders
The health and safety of those with rare diseases and their caregivers are always our top priorities at the National Organization for Rare Disorders (NORD). We know our members are working tirelessly to support their communities during this global crisis. Rare disease organizations have felt the impact of the Coronavirus pandemic on all elements of our work including mission-critical programs, research, patient assistance, events, meetings and other activities.
We stand in solidarity with the rare community and would like to extend support for those impacted by COVID-19, directly and indirectly. By sharing resources on how to be prepared and seek proper care under these unusual circumstances, we hope to educate and empower the community during this unprecedented time.
+myBinderRelated Content
-
Advocacy Day – Sickle Cell Disease Association of America, Inc.Sickle Cell Disease Association of Ameri...
-
Congressional Briefing: Comprehensive Sickle Cell Disease Care in a Time of InnovationCongressional Briefing: Comprehensive ...
-
Lifestyle Adjustments During COVID-19 – SCDAAhttps://www.sicklecelldisease.org/wp-con...
-
Tina Kay HughesRetired at the age of 34 because of Sick...
-
Wanda BordersWanda Borders is a licensed Social Worke...
-
The Heart of Gold Sickle Cell Foundation of Northern VirginiaIt is our mission to serve as an advocat...
-
Sickle Cell Foundation of Orange CountyThe Sickle Cell Foundation of Orange Cou...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Powered by
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.